Monday, May 7, 2012

NICU Day 108

Will weighs 4lbs 14.1oz or 2215 grams. He was running a high temperature of 99.3 this morning whihc is very unusual for him but the nurse checked it later and it was down to 97.8. He didn't eat good for us at 4am or at 8am but his 12noon feeding was much better. I have a feeling he knows something is going on tomorrow. So tomorrow is the big day for his hernia repair surgery. I know he will be in great hands but we are very nervous about tomorrow, me especially. This is something that needs to be done and Will will feel so much better after the surgery with that big hernia gone.

Here are the procedures for tomorrow's surgery. Will will not be able to get any food after his midnight feeding. The nurses will start an IV for fluids and he will be put back on the ventilator sometime in the early morning. Dr. Pigott will be performing Will's surgery and it is usually around 12noon but it could be before or after. He will remain sedated for pain because if he moves too much then he might cause himself to rip the incision and that would be really bad. Will will remain on the ventilator until the doctors feel he is ready to come back off. Once he is off the ventilator he can resume eating small amounts by bottle.

We are nervous about tomorrow. Please pray for peace, patience, the doctor who will perform Will's surgery, the nurses that will tend to him, and everyone else involved in his surgery. He will be in great hands tomorrow but we are still nervous about the whole thing. I will update everyone once I know more tomorrow.

Sunday, May 6, 2012

Nicu Day 107

Today Will weighs 4lbs 13.3oz or 2190 grams. He has been having a good day. Today is bittersweet because it is my due date. So that makes Will full term. I am happy and sad at the same time about today. Happy because I got to meet my sweet Will 16 weeks early but sad because I did not get to carry out a full term pregnancy. Oh well I guess the Lord knew what he was doing when he decided to let me see Will 16 weeks early.

As far as today there are no changes.

Saturday, May 5, 2012

Nicu Day 106

Will had a good night. We weighs 4lbs 12.4oz or 2165 grams. As far as changes today when he takes a bottle he can get 50-60mls instead of 45-55mls. Let me tell ya this boy is a piglet. He is eating so good.

We have been busy today getting his room ready and all of his things put away. He has a ton of clothes and toys. He is set for when he comes home. We have been so blessed!

Friday, May 4, 2012

NICU Day 105

Will had a great night. He weighs 4lbs 11.3oz or 2135 grams. He is doing fabulous! His parents are doing much better. Please pray for us as we go through surgery on Tuesday and that Will can be free of any pain and not stay on the ventilator for a long time. His chest xray that he had on Monday was so good that the Doctors feel comfortable that he will be on the ventilator for a day or day and half. We are praying for a smooth recovery. So please begin praying with us as we approach Tuesday.

As far as today's orders the only thing is to turn Will's flow down again to 2mls or .2 liters of flow. He is really not requiring much pressure to help him keep his lungs inflated because he is basically doing it on his own. Yeah for flow changes because that is just one step closer to completely getting him off the oxygen all together.


"For with God nothing will be impossible.” Luke 1:37

Thursday, May 3, 2012

NICU Day 104 & Happy 15 Weeks Old

Will had a good night. He gained weight and now weighs 4lbs 10.3oz or 2105 grams. Yeah for the weight gain! We finally got the answers we were wanting today after sitting down with Will's doctor. His plan is to have Will's eyes checked again in 2 weeks, have hernia surgery on Tuesday, and he lowered his oxygen flow to 3mls today. We were assured that we should be gone by June 1st. Let' hope! Thanks for allowing me to vent on the blog yesterday, but as parents we were just really flustered given the eye check up and then not knowing what was going on with Will. We appreciate your prayers and we know that God has a special plan for us and Will. Only HE knows when Will will come home and we will continue to be patient with HIM and follow his guidance for our lives.

Wednesday, May 2, 2012

Nicu Day 103

Will had a good night. He weighs 4lbs 9.4oz or 2025 grams. He got his eyes checked today and they are improving but are not fully developed. The ROP was in stage 2 zone 2 now it is stage 2 zone 3 which is an improvement. It is all of the vessels on the inside corner of the eyes that are not fully developed. Dr Brawner said another 4 weeks and they should be completely developed. What does this means for our going home time, I have no clue. If it is my guess, probably another 4 weeks then we might be going home. Who knows? I'm frustrated can you tell? I want my baby boy home sooooooooooooooooo bad that I can't stand it anymore. I have to keep reminding myself God is in control but when you are literally at your breaking point you just don't know what to do anymore. I'm anxious to get him home and I want it done now and I can't stand it! I wanna be one of those moms who is walking out of the hospital with their newborn baby and it kills me everytime I see that happen when I'm at the hospital. I've waited 4 years to be a mom and to have my baby at home, why am I having to wait again? Ok, now I'm finished complaining. So as of right now, I guess I'll keep trucking on and visiting my little ray of sunshine who greets me every morning with a huge smile and bright eyes. Patience, patience, patience is what I need.


Tuesday, May 1, 2012

NICU Day 102

Will had a bad day yesterday but a good night last night. He had 3 bradys yesterday within a 12 hour window which is very unusual for him. So the doctor decided to get blood work and switch him over to every other feeding and to put the feeding tube back in. So he was able to rest last night. All the blood work came back good but we are still waiting on the blood cultures to come back. Those will take a few days. Dr Omara decided to go back today with full feedings and see how he does and then get another CRP blood test in the morning to check for any infections again. We were so worried about Will last night that we didn't sleep good but we are right back at it again today. They are trying to make sure he is clear of any infection since he might possibly be having surgery in the coming days. Its good to err on the side of caution when Will has a bad day. Good thing is he gained weight! He weighs 4lbs 8oz or 2025 grams. So hopefully Will can be on the mend today and feel much better. Thanks for your continued prayers.