Update on Will

Yesterday at noon Will decided to throw us for a loop. He got his eyes dilated for his eye exam and then ate. He wasn't very interested in eating yesterday so he desated and dropped his heartrate several times during his feeding. I then put him back in his bed because he was extremely tired. He then tried to act like he was getting strangled, coughed, and sneezed all at the same time and then completely dropped his heartrate and decided not to breathe. They had to put his nasal cannual back on and then oxygen bag him to get him to breathe again. He came too and they removed the cannual and he was fine. He slept the rest of the day. At his 4pm feeding he was fine. At his 8pm feeding, he ate good but when we put him back to bed he had another episode. At his 12am and 4am feeding he did fine for his nurse. At his 8am feeding this morning, we were observed by a feeding specialist to see if she could tell what the problem was. He was swallowing good and taking good breaths while eating. He was very tired and didn't eat as good as he had been. We will work with her again and try some new techniques to see what is causing his problems. It might be reflux or something else. If it is reflux then they will put him through a swallow test to see if that is the problem.

As of right now, the doctors are going to continue to watch and monitor him. We will not be going home on Saturday. He said he will change his discharge date to Monday but that may change as the weekend progresses. We just don't know anything yet. We are not leaving until we figure out the problem and what is causing Will to all of a sudden have theses episodes.

Please pray for us as we are literally scared to death now and that our nerves will calm down. Please pray for everyone involved that they can work to figure out what is causing Will to have all of these episodes all of a sudden. We need your prayers for our sweet, precious Will who we long to have home soon.